This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $1,248,197 | $1,565,600 | $156,000 | $984,047 | $723,503 |
| FY2023 | 990 | $1,070,661 | $1,253,284 | $125,951 | $1,281,404 | $1,037,746 |
| FY2022 | 990 | $1,363,205 | $1,379,227 | $161,594 | $1,598,197 | $1,216,006 |
| FY2021 | 990 | $785,563 | $723,112 | $93,750 | $1,489,428 | $1,232,028 |
| FY2020 | 990 | $1,165,055 | $382,339 | $52,500 | $1,393,791 | $1,169,575 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 100% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| University of MichiganAnn Arbor, MI | Research to study LGS | $49,951 | 2023 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Tracy Dixon-Salazar Phd | Executive Director | 60.00 | $132,498 |
| Amber Mathas | Sr Director of Operations | 40.00 | $94,661 |
| Deena Andreola | Board Member | 1.00 | $0 |
| Kat Belendiuk Phd | Board Member |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| Grant |
| $37,500 |
| 2024 |
| Mayo ClinicRochester, MN | Grant | $30,000 | 2024 |
| NORTHWESTERN UNIVERSITY | RESEARCH TO STUDY LGS | $25,000 | 2021 |
| CHILDREN'S HOSPITAL OF ORANGE COUNTY | RESEARCH TO STUDY LGS | $25,000 | 2020 |
| UNIVERSITY OF MELBOURNE | RESEARCH TO STUDY LGS | $25,000 | 2021 |
| UNIVERSITY OF CALIFORNIA SAN FRANCISCO | RESEARCH TO STUDY LGS | $25,000 | 2020 |
| CHILDREN'S HOSPITAL OF ORANGE COUNTY | RESEARCH TO STUDY LGS | $22,500 | 2021 |
| UNIVERSITY OF RICHMOND | RESEARCH TO STUDY LGS | $20,000 | 2021 |
| Stanford University | RESEARCH TO STUDY LGS | $10,000 | 2022 |
| Danny Did FoundationEvanston, IL | Grant | $5,000 | 2024 |
| Northwestern University | RESEARCH TO STUDY LGS | $5,000 | 2022 |
| University of Melbourne | RESEARCH TO STUDY LGS | $5,000 | 2022 |
| Northwestern UniversityChicago, IL | Grant | $5,000 | 2024 |
| Childrens Hospital of Orange County | RESEARCH TO STUDY LGS | $2,500 | 2022 |
| 1.00 |
| $0 |
| Jacqueline Villatoro | Board Member | 1.00 | $0 |
| Kevin Merritt Cfa | Treasurer | 2.00 | $0 |
| Dale Todd | Secretary | 2.00 | $0 |
| Fred Roedl | Chair | 10.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202443169349306234
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202332629349300903
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202243199349321969
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202103199349321805
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202043219349321389
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201943189349312834
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201823199349318217
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201703189349313715
Form 990 · FY2015 · period ending Dec 31, 2015
Filing id 201622719349300522
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.