This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $677,234 | $442,453 | $17,500 | $508,508 | $474,715 |
| FY2023amended | 990 | $579,330 | $611,323 | $101,074 | $546,128 | $239,933 |
| FY2022 | 990 | $1,065,492 | $1,503,582 | $509,127 | $848,970 | $271,926 |
| FY2021 | 990 | $587,488 | $593,976 | $54,209 | $883,165 | $710,025 |
| FY2020 | 990 | $779,559 | $855,610 | $380,014 | $783,847 | $514,050 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 67% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| Board of Regents NSHE obo University of RenoReno, NV | Research Grant | $100,000 | 2022 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Robert Sunris | President | 5.00 | $0 |
| Eunice Kim | Vice President | 5.00 | $0 |
| Rachel Alvarez | Executive Director Secretary | 40.00 | $108,898 |
| Hilary Dover | Treasurer |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| Dystroglycanopathy Research |
| $50,000 |
| 2020 |
| University of PittsburghPittsburgh, PA | LAMA2 Research | $50,000 | 2020 |
| Rutgers Biomedical and Health SciencesNewark, NJ | Research Grant | $50,000 | 2022 |
| National Institute of Health - Dr BonnemanBethesda, MD | Research Grant | $25,000 | 2021 |
| National Institute of Neurological Disorders and StrokeBethesda, MD | Research Grant | $19,000 | 2023 |
| 0.00 |
| $0 |
| Jeff Rowbottom | Board Member | 0.00 | $0 |
| Dr John Day | Board Member | 0.00 | $0 |
| Dr Oscar H Mayer | Board Member | 0.00 | $0 |
| Dr Carla Grossman | Board Member | 0.00 | $0 |
| Mark Beare | Board Member | 0.00 | $0 |
| Tim Knutson | Board Member | 0.00 | $0 |
| Dr Jodi Wolff | Board Member | 0.00 | $0 |
| Mindy Roberts | Board Member | 0.00 | $0 |
| Anthony Parisi | Board Member | 0.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023 · amendedIRS bulk XML
Filing id 202413399349300896
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202332999349300303
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202242989349300624
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202132899349300303
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.