This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2025
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2025 | 990 | $3,364,753 | $2,107,901 | $1,319,962 | $8,622,383 | $7,836,584 |
| FY2024 | 990 | $1,297,847 | $2,097,172 | $1,327,408 | $6,529,501 | $6,081,300 |
| FY2023 | 990 | $983,511 | $2,087,691 | $1,394,890 | $7,528,235 | $6,940,273 |
| FY2022 | 990 | $7,954,948 | $791,460 | $64,250 | $8,139,856 | $8,088,418 |
| FY2021 | 990 | $840,696 | $43,226 | $0 | $797,470 | $797,470 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 29% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| Board InstituteNew York, NY | Report of post-mortem analysis | $315,000 | 2025 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Brian Tseng | Director / CSO | 40.00 | $315,983 |
| Robert De Luxembourg | Chairman | 1.00 | $0 |
| Julie De Luxembourg | Vice Chair | 1.00 | $0 |
| Cindy Gavin | Director |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| RESEARCH |
| $312,500 |
| 2023 |
| The Broad InstituteCambridge, MA | Variant-to-function map of POLG | $310,000 | 2024 |
| The Broad InstituteCambridge, MA | Variant-to-function map of POLG | $305,000 | 2024 |
| Jeeva Clinical Trials IncManassas, VA | Global Natural History Study | $100,000 | 2025 |
| Across Healthcare LLCCarrollton, GA | Creation of Platform Accross Matrix | $100,000 | 2025 |
| UNITED MITOCHONDRIAL DISEASE FOUNDATIONPITTSBURGH, PA | RESEARCH | $50,000 | 2023 |
| University of MiamiCoral Gables, FL | An Ex Vivo Human mtDNA Myopathy Mod | $49,000 | 2025 |
| THE JACKSON LABORATORYBAR HARBOR, ME | RESEARCH | $46,250 | 2023 |
| United Mitochondrial DiseasePittsburgh, PA | Natural history study (Mito) | $39,825 | 2025 |
| Childrens Hospital of PAPhiladelphia, PA | Creation of a POLG Crisis Response | $25,000 | 2025 |
| Columbia University IMCNew York, NY | Report of post-mortem analysis | $25,000 | 2024 |
| Childrens Hospital of PAPhiladelphia, PA | POLG Retrospective Data Query | $13,262 | 2024 |
| Childrens Hospital of PAPhiladelphia, PA | POLG Retrospective Data Query | $13,262 | 2024 |
| 1.00 |
| $0 |
| Remy Best | Director | 1.00 | $0 |
| Allyson Ocean | Director | 1.00 | $0 |
| Jennifer Adams | Director | 1.00 | $0 |
| Francesco De Rubertis | Director | 1.00 | $0 |
| Stven Altschuler | Director | 1.00 | $0 |
| Jrg Duschmale | Director | 1.00 | $0 |
| Eileen Kane | Corp. Secretary | 1.00 | $0 |
| Marcus Siezing | Treasurer | 1.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2024 · period ending Dec 31, 2024IRS bulk XML
Filing id 202511359349303021
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202443199349309149
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202303179349304965
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202221369349307557
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.