Accepts applications
Can I apply?
Accepts applications
The funder's latest Form 990-PF says it accepts applications. Read the instructions below before you write.
- How to apply
- Deadlines
The funder's latest Form 990-PF says it accepts applications. Read the instructions below before you write.
Application policy: Accepts applications, as stated on the FY2024 return.
Application guidance comes from the funder's own Form 990-PF, Part XV (the section where a private foundation says how to apply), shown as filed. It is the funder's words, not ours. These fields are free text and the IRS form cuts them short. Filers sometimes put whole sentences in the contact-name box. Shown exactly as filed.
Giving by year
Total assets by year
| Year | Form | Revenue | Expenses | Giving | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990-PF | $8,238,171 | $3,493,538 | $2,169,889 | $35,041,767 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 13% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| EMORY UNIVERSITYATLANTA, GA | GENETHINK APPLICATION | $105,000 | 2016 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Paul Rosenau | President | 5.00 | $0 |
| Gillian Hauboldt | Treasurer | 2.00 | $0 |
| Mary Kay Delvo Amanda Post | Secretary | 2.00 | $0 |
| Heather Techmeier | Director |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| $33,535,088 |
| FY2023 | 990-PF | $2,316,796 | $2,493,037 | $1,751,191 | $30,291,573 | $28,951,124 |
| FY2022 | 990-PF | $1,612,643 | $1,884,423 | $1,248,984 | $30,473,177 | $29,119,327 |
| FY2021 | 990-PF | $1,957,355 | $2,538,328 | $2,045,756 | $30,431,598 | $29,624,200 |
| FY2020 | 990-PF | $1,406,227 | $2,592,511 | $2,288,582 | $31,834,443 | $31,460,175 |
| FY2019 | 990-PF | $2,777,190 | $2,019,601 | $1,816,401 | $33,862,722 | $33,341,242 |
| FY2018 | 990-PF | $231,817 | $999,548 | $767,898 | $33,105,401 | $32,082,378 |
| FY2017 | 990-PF | $4,514,351 | $1,546,271 | $1,465,233 | $33,872,948 | $33,628,258 |
| FY2016 | 990-PF | $2,882,909 | $3,747,274 | $3,675,287 | $30,905,140 | $29,740,219 |
| Brain Connectome as a Novel Biomarker of KD |
| $105,000 |
| 2020 |
| Children's Hospital of PittsburghPittsburgh, PA | NDRD Krabbe Disease Patient Care & Research Grant | $103,253 | 2019 |
| Children's Hospital of PittsburghPittsburgh, PA | NDRD Krabbe Disease Patient Care & Research Grant | $96,361 | 2019 |
| UNIVERSITY OF PENNSYLVANIAPHILADELPHIA, PA | STEM CELL GENE THERAPY FOR KD | $86,625 | 2016 |
| University of IllinoisChicago, IL | Challenging the Capacity of AAV-GALC Gene Therapy to Cope with Modifiers of Adult Brain Function | $85,000 | 2024 |
| University of IllinoisChicago, IL | Challenging the Capacity of AAV-GALC Gene Therapy to Cope with Modifiers of Adult Brain Function | $85,000 | 2023 |
| UNIVERSITY OF ILLINOISURBANA, IL | RESEARCH ON GENE THERAPY WITH BMT | $84,000 | 2016 |
| University of IllinoisChicago, IL | Generation of KD Mouse Model to Enable Regulated Expression of Therapeutic GALC Enzyme | $75,000 | 2022 |
| University of IllinoisChicago, IL | Generation of KD Mouse Model to Enable Regulated Expression of Therapeutic GALC Enzyme | $75,000 | 2020 |
| University of IllinoisChicago, IL | Generation of KD Mouse Model to Enable Regulated Expression of Therapeutic GALC Enzyme | $75,000 | 2021 |
| CHILDREN'S HOSPITAL OF PITTSBURGHPITTSBURGH, PA | PILOT ENGRAFTMENT STUDY | $68,385 | 2017 |
| CHILDREN'S HOSPITAL OF PITTSBURGHPITTSBURGH, PA | RESEARCH TO BETTER TREAT KD | $65,472 | 2016 |
| UNIVERSITY OF PENNSYLVANIAPHILADELPHIA, PA | STEM CELL GENE THERAPY FOR KD | $64,575 | 2017 |
| University of PennsylvaniaPhiladelphia, PA | Elucidating the Mechanisms Underlying Macrophage Dysfunction in KD | $60,000 | 2023 |
| University of PennsylvaniaPhiladelphia, PA | Elucidating the Mechanisms Underlying Macrophage Dysfunction in KD | $60,000 | 2024 |
| University of IllinoisChicago, IL | Effects of Motor Learning on Efficacy and Safety of AAV-Gene Therapy in KD | $60,000 | 2024 |
| University of IllinoisChicago, IL | Dysfunction of Brain Synapsis in KD | $60,000 | 2023 |
| University of IllinoisChicago, IL | Dysfunction of Brain Synapsis in KD | $60,000 | 2024 |
| University of IllinoisChicago, IL | Effects of Motor Learning on Efficacy and Safety of AAV-Gene Therapy in KD | $60,000 | 2023 |
| University of KansasKansas City, KS | Improving Developmental Outcomes in Mouse Models of KD | $59,593 | 2024 |
| Mayo ClinicRochester, MN | Elucidating the Metabolic Signature of KD Plasma, Dried Blood Spots, and Cerebrospinal Fluid Using Flux Analysis | $57,359 | 2024 |
| University of WashingtonSeattle, WA | Development of High Throughout Screening Assay for Acid Ceramidose and UGT Inhibitors Grant | $23,397 | 2019 |
| UNIVERSITY OF WASHINGTONSEATTLE, WA | RESEARCH OF 2ND TIER NEWBORN SCREENS | $21,000 | 2016 |
| UNIVERSITY OF WASHINGTONSEATTLE, WA | RESEARCH OF 2ND TIER NEWBORN SCREENS | $21,000 | 2017 |
| 40.00 |
| $188,041 |
| Dr Gabriel Cohn | Director | 40.00 | $175,000 |
| Julie Mccarrier | Director | 2.00 | $0 |
| Li Ou | Director | 2.00 | $0 |
| Phil Christianson | Director | 2.00 | $0 |
| Marci Sontag | Director | 2.00 | $0 |
| Karlita Blackwell | Director | 2.00 | $0 |
Only shared inboxes and organization phone lines that appear in public filings are shown here. Contact details for named individuals are never published, even though the filing itself is public.
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990-PF · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202402619349100410
Form 990-PF · FY2022 · period ending Dec 31, 2022
Filing id 202312569349101016
Form 990-PF · FY2021 · period ending Dec 31, 2021
Filing id 202201369349105335
Form 990-PF · FY2020 · period ending Dec 31, 2020
Filing id 202133149349100018
Form 990-PF · FY2019 · period ending Dec 31, 2019
Filing id 202011969349100146
Form 990-PF · FY2018 · period ending Dec 31, 2018
Filing id 201931359349103913
Form 990-PF · FY2017 · period ending Dec 31, 2017
Filing id 201831299349100138
Form 990-PF · FY2016 · period ending Dec 31, 2016
Filing id 201701319349102740
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.