This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $5,518,236 | $7,194,531 | $4,699,297 | $22,929,761 | $16,089,163 |
| FY2023 | 990 | $7,430,625 | $7,652,304 | $5,456,354 | $24,668,019 | $17,765,458 |
| FY2022 | 990 | $6,450,445 | $7,021,827 | $5,371,260 | $22,585,702 | $17,987,137 |
| FY2021 | 990 | $7,736,054 | $4,062,520 | $2,610,877 | $20,862,871 | $18,558,519 |
| FY2020 | 990 | $4,844,748 | $4,608,812 | $3,328,999 | $16,447,931 | $14,784,158 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 81% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| UNIVERSITY OF SOUTHERN CALIFORNIALOS ANGELES, CA | TO FUND RESEARCH TO FIND A CURE FOR EB | $183,750 | 2022 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jill Vedder | CHAIRPERSON | 5.00 | $0 |
| Nathan Burmeister | DIRECTOR | 1.00 | $0 |
| Ari Deshe | VICE CHAIRMAN | 1.00 | $0 |
| Chad Ceretto | DIRECTOR |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| COLUMBIA UNIVERSITYNEW YORK, NY |
| TO FUND RESEARCH TO FIND A CURE FOR EB |
| $169,209 |
| 2023 |
| TUFTS MEDICAL CENTERBOSTON, MA | TO FUND RESEARCH TO FIND A CURE FOR EB | $168,158 | 2020 |
| STANFORD UNIVERSITYPALO ALTO, CA | TO FUND RESEARCH TO FIND A CURE FOR EB | $149,150 | 2024 |
| AWSSEATTLE, WA | TO FUND RESEARCH TO FIND A CURE FOR EB | $126,555 | 2022 |
| AWSSEATTLE, WA | TO FUND RESEARCH TO FIND A CURE FOR EB | $103,807 | 2023 |
| THOMAS JEFFERSON UNIVERSITYPHILADELPHIA, PA | TO FUND RESEARCH TO FIND A CURE FOR EB | $79,527 | 2021 |
| AWSSEATTLE, WA | TO FUND RESEARCH TO FIND A CURE FOR EB | $64,071 | 2024 |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCINCINNATI, OH | TO FUND RESEARCH TO FIND A CURE FOR EB | $51,223 | 2023 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | TO FUND RESEARCH TO FIND A CURE FOR EB | $46,340 | 2024 |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCINCINNATI, OH | TO FUND RESEARCH TO FIND A CURE FOR EB | $43,296 | 2021 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | TO FUND RESEARCH TO FIND A CURE FOR EB | $41,903 | 2022 |
| CENTRE FOR HUMAN GENETICSCAMBRIDGE, MA | TO FUND RESEARCH TO FIND A CURE FOR EB | $31,520 | 2021 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | TO FUND RESEARCH TO FIND A CURE FOR EB | $29,255 | 2023 |
| CENTRE FOR HUMAN GENETICSCAMBRIDGE, MA | TO FUND RESEARCH TO FIND A CURE FOR EB | $27,120 | 2022 |
| EBLIFESTYLE INCNORFOLK, VA | TO FUND RESEARCH TO FIND A CURE FOR EB | $25,000 | 2023 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | TO FUND RESEARCH TO FIND A CURE FOR EB | $24,982 | 2021 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | TO FUND RESEARCH TO FIND A CURE FOR EB | $20,100 | 2023 |
| COLUMBIA UNIVERSITYNEW YORK, NY | TO FUND RESEARCH TO FIND A CURE FOR EB | $19,361 | 2022 |
| ASCENSION SETON MEDICAL CENTERAUSTIN, TX | TO FUND RESEARCH TO FIND A CURE FOR EB | $16,440 | 2022 |
| PHOENIX CHILDREN'S HOSPITALPHOENIX, AZ | TO FUND RESEARCH TO FIND A CURE FOR EB | $12,651 | 2022 |
| PHOENIX CHILDREN'S HOSPITALPHOENIX, AZ | TO FUND RESEARCH TO FIND A CURE FOR EB | $12,500 | 2024 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | TO FUND RESEARCH TO FIND A CURE FOR EB | $8,229 | 2022 |
| ASCENSION SETON MEDICAL CENTERAUSTIN, TX | TO FUND RESEARCH TO FIND A CURE FOR EB | $8,199 | 2023 |
| PHOENIX CHILDREN'S HOSPITALPHOENIX, AZ | TO FUND RESEARCH TO FIND A CURE FOR EB | $7,899 | 2021 |
| 1.00 |
| $0 |
| Daniel Deshe | DIRECTOR | 1.00 | $0 |
| Ric Firth | DIRECTOR | 1.00 | $0 |
| Corey Gray | DIRECTOR | 1.00 | $0 |
| Jennifer Kauf | SECRETARY | 1.00 | $0 |
| Emily Kubik | TREASURER | 1.00 | $0 |
| Faye Dilgen | DIRECTOR | 1.00 | $0 |
| Greg Licholai | DIRECTOR | 1.00 | $0 |
| Ed Vedder | DIRECTOR | 1.00 | $0 |
| Tracy Baldwin | DIRECTOR | 1.00 | $0 |
| Michael Sacks | DIRECTOR | 1.00 | $0 |
| Marc Seidner | DIRECTOR | 1.00 | $0 |
| Michael Patrick Hund | CEO | 60.00 | $466,331 |
| Imani Ribadeneyra | CHIEF MARKETING OFFICER | 40.00 | $218,812 |
| Allison Mcgettigan | COMMUNICATIONS & OPERATIONS DIRECTOR | 40.00 | $117,138 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202401809349300010
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202303189349314695
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202213199349307356
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202132669349301248
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202032379349301003
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201932889349300318
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201832509349300938
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201731669349300523
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.