This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $1,238,474 | $928,828 | $414,393 | $2,302,196 | $2,272,106 |
| FY2023 | 990 | $2,062,718 | $600,490 | $280,163 | $2,051,432 | $2,020,460 |
| FY2022 | 990 | $362,899 | $236,797 | $127,500 | $482,449 | $482,449 |
| FY2021 | 990 | $412,185 | $68,046 | $500 | $356,347 | $356,347 |
| FY2020 | 990 | $8,961 | $1,460 | $0 | $12,208 | $12,208 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 100% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| KENNEDY KRIEGER INSTITUTEBALTIMORE, MD | KABUKI SYNDROME RESEARCH | $148,725 | 2023 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Annie Dean | CO-PRESIDENT | 1.00 | $0 |
| Jill Orum Dunbar | CO-PRESIDENT | 1.00 | $0 |
| Patrick Dunbar | TREASURER | 1.00 | $0 |
| Thomas Cingari Jr | VICE PRESIDENT |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| KABUKI SYNDROME RESEARCH |
| $109,290 |
| 2024 |
| BOSTON CHILDRENS HOSPITALBOSTON, MA | KABUKI SYNDROME RESEARCH | $101,378 | 2024 |
| BOSTON CHILDRENS HOSPITALBOSTON, MA | KABUKI SYNDROME RESEARCH | $84,938 | 2023 |
| SEATTLE CHILDREN'S HOSPITALSEATTLE, WA | KABUKI SYNDROME RESEARCH | $28,725 | 2024 |
| 1.00 |
| $0 |
| Edoardo Zegna Di Monte Rubello | VICE PRESIDENT | 1.00 | $0 |
| Leila Zegna Di Monte Rubello | VICE PRESIDENT | 1.00 | $0 |
| Jessica Mcandrew | DIRECTOR | 1.00 | $0 |
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202413129349301146
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202313189349316966
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202233189349311083
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202101359349300935
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202001579349300505
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201901349349301315
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.