Public charity
WASHINGTON, DCCity and state as stated on its FY2026 returnEIN Website
This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2026
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2026 | 990 | $0 | $541 | $0 | $0 | $0 |
| FY2025 | 990 | $2,759,719 | $3,286,372 | $764,779 | $209,267 | $147,458 |
| FY2024 | 990 | $4,039,327 | $3,991,706 | $0 | $848,403 | $674,111 |
| FY2023 | 990 | $3,159,544 | $3,979,523 | $0 | $1,258,775 | $626,489 |
| FY2022 | 990 | $2,742,364 | $4,726,857 | $447,000 | $2,166,575 | $1,446,468 |
| FY2021 | 990 | $5,267,215 | $3,367,926 | $1,507,000 | $4,487,214 | $2,740,445 |
| FY2020 | 990 | $1,863,831 | $2,570,792 | $1,020,395 | $2,462,353 | $841,156 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 19% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| DOWN SYNDROME CLINICAL TRIALS NETWORK MULTIPLE GRANTSBURLINGTON, MA | TO SUPPORT DOWN SYNDROME MEDICAL RESEARCH | $1,290,000 | 2021 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Anthony Providenti | Board Chair | 1.00 | $0 |
| Tony Hung | Board Vice Chair | 1.00 | $0 |
| Hector Guinness | Treasurer | 1.00 | $0 |
| Chris Senna | Secretary |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| DOWN SYNDROME CLINICAL TRIALS NETWORK MULTIPLE GRANTS |
| TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH |
| $451,723 |
| 2020 |
| RAND CORPORATIONSANTA MONICA, CA | TO SUPPORT DOWN SYNDROME MEDICAL INFO | $170,000 | 2022 |
| HARVARD UNVERSITYBOSTON, MA | TO SUPPORT DOWN SYNDROME MEDICAL INFO | $150,000 | 2022 |
| MASSACHUSETTS INSTITUTE OF TECHNOLOGYCAMBRIDGE, MA | TO STUDY THE GENETIC UNDERSTANDING FOR DOWN SYNDROME | $110,000 | 2020 |
| UCONN HEALTH - PINTERFRAMINGTON, CT | TO SUPPORT GENE THERAPY RESEARCH FOR DOWN SYNDROME | $100,000 | 2021 |
| DSC2UBOSTON, MA | TO SUPPORT DOWN MEDICAL SYNDROME | $90,000 | 2022 |
| UCONN HEALTH - PINTERFRAMINGTON, CT | TO SUPPORT GENE THERAPY RESEARCH FOR DOWN SYNDROME | $65,000 | 2020 |
| UCSDLOS ANGELES, CA | TO SUPPORT THE INITIAL FEASIBILITY OF THE DS-CTN NETWORK | $50,000 | 2020 |
| DSC2UBOSTON, MA | TO SUPPORT DOWN SYNDROME MEDICAL INFORMATION | $45,000 | 2021 |
| ADVOCATE HEALTH RESOURCESDOWNERS GROVE, IL | TO SUPPORT DOWN SYNDROME MEDICAL INFO | $37,000 | 2022 |
| ADVOCATE HEALTH RESOURCESDOWNERS GROVE, IL | TO SUPPORT DOWN SYNDROME MEDICAL INFORMATION | $30,000 | 2021 |
| EMORYATLANTA, GA | COVID RESEARCH | $27,000 | 2021 |
| STANFORD UNIVERSITYSTANFORD, CA | TO SUPPORT COGNITION RESEARCH FOR DOWN SYNDROME | $18,750 | 2020 |
| GDPR IT GOVERNANCE USA INCNEW YORK, NY | SECURITY IMPLEMENTATION | $15,000 | 2021 |
| UNIVERSITY OF ARIZONATUSCON, AZ | TO SUPPORT COGNITION AND SLEEP APNEA RESEARCH FOR DOWN SYNDROME | $7,500 | 2020 |
| 1.00 |
| $0 |
| Beverly Paperiello | Director | 1.00 | $0 |
| Claudia Moreira | Director | 1.00 | $0 |
| Das Narayandas | Director | 1.00 | $0 |
| Jeff Strobel | Director | 1.00 | $0 |
| Karen Gaffney | Director | 1.00 | $0 |
| Lasandra Brill | Director | 1.00 | $0 |
| Ludivine Van Der Heyden | Director | 1.00 | $0 |
| Hampus Hillerstrom | President and CEO | 40.00 | $0 |
| Katherine O'Neill | VP Marketing & Community E | 40.00 | $0 |
| Lois Kelly | VP of Clinical Operations | 40.00 | $0 |
| Michelle Petronio | Chief Development Officer | 40.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2025 · period ending Sep 30, 2025IRS bulk XML
Filing id 202620759349300132
Form 990 · FY2024 · period ending Sep 30, 2024IRS bulk XML
Filing id 202542129349301964
Form 990 · FY2023 · period ending Sep 30, 2023IRS bulk XML
Filing id 202412069349301551
Form 990 · FY2022 · period ending Sep 30, 2022
Filing id 202312169349301556
Form 990 · FY2021 · period ending Sep 30, 2021
Filing id 202210459349302131
Form 990 · FY2020 · period ending Sep 30, 2020
Filing id 202102289349300230
Form 990 · FY2018 · period ending Sep 30, 2018
Filing id 201942279349302494
Form 990 · FY2017 · period ending Sep 30, 2017
Filing id 201842259349301784
Form 990 · FY2016 · period ending Sep 30, 2016
Filing id 201711779349300231
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.