This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $4,813,748 | $5,531,022 | $1,856,999 | $5,325,567 | $4,987,425 |
| FY2023 | 990 | $4,855,820 | $3,723,772 | $856,917 | $6,263,405 | $5,884,190 |
| FY2022 | 990 | $3,669,308 | $5,494,227 | $1,969,729 | $6,438,774 | $4,465,901 |
| FY2021 | 990 | $4,132,287 | $4,097,063 | $1,723,307 | $7,416,506 | $6,030,519 |
| FY2020 | 990 | $3,850,950 | $2,465,808 | $246,263 | $6,281,992 | $5,622,968 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 80% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| University of Virginia Rector & VisitorsCharlottesville, VA | Rett Syndrome Research | $100,000 | 2024 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jospeh Horrigan Md | Trustee | 0.50 | $0 |
| Lisa Monteggia Phd | Trustee | 0.50 | $0 |
| David Pass Pharmd | Chairman | 1.00 | $0 |
| Mitch Bleske | Treasurer |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| The Regents of the University of California US San DiegoOakland, CA |
| Rett Syndrome Research |
| $100,000 |
| 2022 |
| VanderbiltNashville, TN | Rett Syndrome Research | $92,466 | 2022 |
| The Regents of the University of California US San DiegoOakland, CA | Rett Syndrome Research | $75,000 | 2021 |
| Boston Children's HospitalBoston, MA | Rett Syndrome Research | $75,000 | 2023 |
| University of California UC San DiegoLa Jolla, CA | Rett Syndrome Research | $75,000 | 2023 |
| Sanford Burnham Prebys Medical CenterLa Jolla, CA | Rett Syndrome Research | $75,000 | 2021 |
| Icahn School of Medicine at Mount SinaiNew York, NY | Rett Syndrome Research | $74,998 | 2021 |
| Massachusetts General HospitalBoston, MA | Rett Syndrome Research | $68,750 | 2022 |
| UC San DiegoDavis, CA | Rett Syndrome Research | $56,250 | 2021 |
| Regents of the University of CaliforniaDavis, CA | Rett Syndrome Research | $50,000 | 2024 |
| Whitehead UniversityCambridge, MA | Rett Syndrome Research | $50,000 | 2022 |
| Lucy Therapeutics IncWaltham, MA | Rett Syndrome Research | $50,000 | 2023 |
| Whitehead UniversityCambridge, MA | Rett Syndrome Research | $50,000 | 2024 |
| PsychogenicsParamus, NJ | Rett Syndrome Research | $45,000 | 2021 |
| Cincinnati Children's Hospital Medical CenterCincinnati, OH | Rett Syndrome Research | $40,500 | 2020 |
| Sanford Burnham Prebys Medical CenterLa Jolla, CA | Rett Syndrome Research | $37,500 | 2020 |
| Whitehead UniversityCambridge, MA | Rett Syndrome Research | $37,500 | 2023 |
| Sanford Burnham Prebys Medical CenterLa Jolla, CA | Rett Syndrome Research | $37,500 | 2022 |
| Icahn School of Medicine at Mount SinaiNew York, NY | Rett Syndrome Research | $37,499 | 2020 |
| Icahn School of Medicine at Mount SinaiNew York, NY | Rett Syndrome Research | $37,499 | 2022 |
| 1.00 |
| $0 |
| Gordon Rich | Founding Seat - Non Voting | 0.50 | $0 |
| Alan Shukovsky | Trustee | 0.50 | $0 |
| Leslie Mehta Esq | Interim Chief Executive Officer | 0.50 | $5,208 |
| Mary Forrest Engel | Trustee | 0.50 | $0 |
| Steve Wood | Vice Chairman | 0.50 | $0 |
| Laura Stoppel Phd | Trustee | 0.50 | $0 |
| Parthy Evans | Trustee - Start 07/24 | 0.50 | $0 |
| Steve Marconi Cpa | Trustee - Start 07/24 | 0.50 | $0 |
| Melissa Kennedy - Exit 1224 | Chief Executive Officer | 40.00 | $186,940 |
| Nupur Garg | VP of Research | 40.00 | $187,300 |
| Timothy Frank | Development Director | 40.00 | $116,466 |
| Meghan Cordeiro | Marketing & Communication Director | 40.00 | $113,308 |
| Drew Jones | VP of Clinical Development | 40.00 | $108,976 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202431979349301348
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202341959349300104
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202241729349301414
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202141599349301139
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202021299349300232
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201941649349300034
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201811949349301331
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201731779349300518
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.