This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2025
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2025 | 990 | $592,005 | $738,955 | $131,994 | $269,505 | $266,897 |
| FY2024 | 990 | $575,301 | $682,510 | $139,353 | $413,847 | $413,847 |
| FY2023 | 990 | $307,957 | $472,698 | $108,020 | $521,056 | $521,056 |
| FY2022 | 990 | $572,188 | $228,527 | $25,165 | $685,818 | $685,818 |
| FY2021 | 990 | $188,701 | $216,622 | $13,206 | $342,157 | $342,157 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 100% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| FABRY SUPPORT AND INFORMATION GROUPCONCORDIA, MO | TO SUPPORT FABRY NEWBORN SCREENING INITIATIVES AS A MEMBER OF THE LYSOSOMAL STORAGE DISEASE COALITION. | $10,000 | 2025 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Gerald Walter | CHAIR | 40.00 | $122,499 |
| Derek Halberg | VICE CHAIR | 1.00 | $0 |
| Tracy Myatt | SECRETARY | 1.00 | $0 |
| Melanie Wilson | TREASURER |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| FABRY SUPPORT AND INFORMATION GROUPCONCORDIA, MO |
| NEWBORN SCREENING SUPPORT VIA TESTING FOR TOTS, AND ORGANIZATION WITHIN FSIG, AND VIA THE LYSOSOMAL STORAGE DISEASE (LSD) COALITION. |
| $10,000 |
| 2024 |
| 1.00 |
| $0 |
| Elizabeth Gaffin | DIRECTOR | 1.00 | $0 |
| Steven Rothman | DIRECTOR | 1.00 | $0 |
| Casey A Mckenna | SENIOR PROGRAM MANAGER | 40.00 | $101,136 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2024 · period ending May 31, 2024IRS bulk XML
Filing id 202500559349301300
Form 990 · FY2023 · period ending May 31, 2023
Filing id 202312869349300626
Form 990 · FY2022 · period ending May 31, 2022
Filing id 202203569349301000
Form 990 · FY2021 · period ending May 31, 2021
Filing id 202102849349300900
Form 990 · FY2019 · period ending May 31, 2019
Filing id 201913119349301381
Form 990 · FY2018 · period ending May 31, 2018
Filing id 201922629349300207
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.