This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $4,524,784 | $3,333,281 | $1,126,959 | $4,414,309 | $2,683,238 |
| FY2023 | 990 | $2,682,408 | $3,355,940 | $1,217,914 | $3,286,760 | $1,491,735 |
| FY2022 | 990 | $2,660,033 | $2,786,124 | $916,190 | $3,764,134 | $2,165,267 |
| FY2021 | 990 | $3,120,220 | $3,082,990 | $1,481,000 | $3,335,798 | $2,291,358 |
| FY2020 | 990 | $3,551,407 | $2,924,430 | $1,446,667 | $3,428,851 | $2,254,128 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 44% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | RESEARCH TO FIND A CURE | $720,000 | 2023 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Erin Reardon Cohn | BOARD CHAIR | 2.00 | $0 |
| Harvey Gaffen | CHAIR EMERITUS | 2.00 | $0 |
| Thomas F Boleky | VICE CHAIR | 2.00 | $0 |
| Joel A Schechter | VICE CHAIR |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL |
| RESEARCH TO FIND A CURE |
| $700,000 |
| 2024 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | ENDOWMENT FOR ALS RESEARCH AND PATIENT CENTER | $600,000 | 2021 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | ENDOWMENT FOR ALS RESEARCH AND PATIENT CENTER | $600,000 | 2020 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | RESEARCH TO FIND A CURE | $581,000 | 2021 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | RESEARCH TO FIND A CURE | $500,000 | 2022 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | RESEARCH TO FIND A CURE | $500,000 | 2020 |
| LOIS INSOLIA ALS CLINICCHICAGO, IL | CLINIC FOR THE THERAPY OF ALS PATIENTS | $375,000 | 2023 |
| LOIS INSOLIA ALS CLINICCHICAGO, IL | CLINIC FOR THE THERAPY OF ALS PATIENTS | $346,667 | 2020 |
| LOIS INSOLIA ALS CLINICCHICAGO, IL | CLINIC FOR THE THERAPY OF ALS PATIENTS | $310,000 | 2022 |
| LOIS INSOLIA ALS CLINICCHICAGO, IL | CLINIC FOR THE THERAPY OF ALS PATIENTS | $300,000 | 2024 |
| LOIS INSOLIA ALS CLINICCHICAGO, IL | CLINIC FOR THE THERAPY OF ALS PATIENTS | $300,000 | 2021 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | ENDOWMENT FOR ALS RESEARCH AND PATIENT CENTER | $100,000 | 2024 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | ENDOWMENT FOR ALS RESEARCH AND PATIENT CENTER | $100,000 | 2023 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | ENDOWMENT FOR ALS RESEARCH AND PATIENT CENTER | $100,000 | 2022 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | EDUCATION | $26,959 | 2024 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | EDUCATION | $22,914 | 2023 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINECHICAGO, IL | EDUCATION | $6,190 | 2022 |
| 2.00 |
| $0 |
| John Coleman Iii Md | VICE CHAIR | 2.00 | $0 |
| Robin Fern | VICE CHAIR | 2.00 | $0 |
| Deborah Crockett | TREASURER | 2.00 | $0 |
| Tina Cascio | DIRECTOR | 2.00 | $0 |
| Aalok Dave | DIRECTOR | 2.00 | $0 |
| Sean Fallon | DIRECTOR | 2.00 | $0 |
| Bonny Gaffen | DIRECTOR | 2.00 | $0 |
| Frank Granata | DIRECTOR | 2.00 | $0 |
| Jodi M Harris | DIRECTOR | 2.00 | $0 |
| Ken Hoffman | DIRECTOR | 2.00 | $0 |
| Janene Jonas | DIRECTOR | 2.00 | $0 |
| Joshua Newsome | DIRECTOR | 2.00 | $0 |
| Mary Lou Pisone | DIRECTOR | 2.00 | $0 |
| Diana Pisone | DIRECTOR | 2.00 | $0 |
| Sarvesh Soi | DIRECTOR | 2.00 | $0 |
| Laura Freveletti | CHIEF EXECUTIVE OFFICER | 40.00 | $191,209 |
| Mark Heiden | DIRECTOR OF COMMUNICATIONS | 40.00 | $127,500 |
| Lauren Webb | CHIEF ADVOCACY AND OUTREACH OFFICER | 40.00 | $120,634 |
| Constance Paesel | CHIEF OPERATIONS OFFICER | 40.00 | $113,500 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202412089349300216
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202301789349301205
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202202369349300105
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202131739349300423
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202031749349301418
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201921759349300972
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201821719349301202
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201801699349301160
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.