This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $2,817,907 | $3,245,884 | $2,621,161 | $7,362,169 | $6,897,505 |
| FY2023 | 990 | $3,651,316 | $2,890,451 | $2,036,876 | $7,363,198 | $7,325,482 |
| FY2022 | 990 | −$12,049 | $1,225,402 | $700,000 | $6,354,337 | $6,323,117 |
| FY2021 | 990 | $1,800,662 | $2,468,582 | $1,867,200 | $7,757,258 | $7,625,843 |
| FY2020 | 990 | $2,276,502 | $1,747,379 | $1,000,000 | $8,316,048 | $8,296,549 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 5% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINEBATIMORE, MD | GRANT TO FUND ALS RESEARCH. | $1,500,000 | 2021 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Beverly Goulet | BOARD CHAIR | 1.00 | $0 |
| Clare Durrett | MANAGING DIRECTOR | 20.00 | $0 |
| Paul Varisco | BOARD MEMBER | 5.00 | $0 |
| Steve Gleason | BOARD MEMBER |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| GRANT TO FUND ALS RESEARCH. |
| $1,029,803 |
| 2024 |
| STAY STRONG VS ALS CHARITIES AID FOUNDATION AMERICAALEXANDRIA, VA | DONATION TO HELP FIGHT BY RAISING AWARENESS AND SECURING THE FUNDING TO SUPPORT THOSE IN SEARCHING FOR A CURE FROM ALS. | $1,000,000 | 2020 |
| CEDARS SINAI HOSPITALLOS ANGELES, CA | GRANT TO FUND ALS RESEARCH. | $946,512 | 2023 |
| JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINEBALTIMORE, MD | GRANT TO FUND ALS RESEARCH. | $724,850 | 2023 |
| CEDARS SINAI HOSPITALLOS ANGELES, CA | GRANT TO FUND ALS RESEARCH. | $523,889 | 2024 |
| JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINEBALTIMORE, MD | GRANT TO FUND ALS RESEARCH. | $500,000 | 2022 |
| ON POINT SCIENTIFICMONTAGUE, NJ | GRANT TO FUND ALS RESEARCH. | $487,346 | 2024 |
| CEDARS-SINAI MEDICAL CENTERLOS ANGELES, CA | DONATION TO ALS RESEARCH. | $367,200 | 2021 |
| DIAGENODE LLCDENVILLE, NJ | GRANT TO FUND ALS RESEARCH. | $229,531 | 2024 |
| DIAGENODE LLCDENVILLE, NJ | GRANT TO FUND ALS RESEARCH. | $227,400 | 2023 |
| MASSACHUSETTS INSTITUTE OF TECHNOLOGY- MCGOVERN INSTITUTECAMBRIDGE, MA | DONATION TO ALS RESEARCH. | $200,000 | 2022 |
| MICROSOFTREDMOND, WA | GRANT TO FUND ALS RESEARCH. | $174,099 | 2024 |
| ANTARES FORMERLY CONTINGASOFTNEW ORLEANS, LA | GRANT TO FUND ALS RESEARCH. | $60,678 | 2024 |
| ON POINT SCIENTIFICMONTAGUE, NJ | GRANT TO FUND ALS RESEARCH. | $53,689 | 2023 |
| LOUISIANA STATE UNIVERSITYBATON ROUGE, LA | GRANT TO FUND ALS RESEARCH. | $41,973 | 2024 |
| PENNINGTON BIOMEDICAL RESEARCH CENTERBATON ROUGE, LA | GRANT TO FUND ALS RESEARCH. | $41,947 | 2024 |
| LOUISIANA STATE UNIVERSITYBATON ROUGE, LA | GRANT TO FUND ALS RESEARCH. | $41,425 | 2023 |
| ALMAGUNEW YORK, NY | GRANT TO FUND ALS RESEARCH. | $15,000 | 2023 |
| ALMAGUNEW YORK, NY | GRANT TO FUND ALS RESEARCH. | $14,900 | 2024 |
| FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTHBETHESDA, MD | GRANT TO FUND ALS RESEARCH. | $10,000 | 2024 |
| UNIVERSITY OF NEW ORLEANS OFFICE OF RESEARCHNEW ORLEANS, LA | GRANT TO FUND ALS RESEARCH. | $6,995 | 2024 |
| 1.00 |
| $0 |
| William J Quinlan Jr | BOARD MEMBER | 1.00 | $0 |
| Steve Finkbeiner | BOARD MEMBER | 1.00 | $0 |
| Pat Quinn | BOARD MEMBER EMERITUS | 1.00 | $0 |
| S Michelle Farr | BOARD MEMBER | 1.00 | $0 |
| Elizabeth Bruce | BOARD MEMBER | 1.00 | $0 |
| John Costello | BOARD MEMBER | 1.00 | $0 |
| Colleen Stephens | CHIEF OF STAFF | 40.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202530349349302018
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202333249349301113
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202233159349304018
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202143579349300139
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201943199349320119
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201813109349301526
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201733199349305698
Form 990 · FY2015 · period ending Dec 31, 2015
Filing id 201602399349300630
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.