This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2025
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2025 | 990 | $1,068,787 | $856,659 | $602,274 | $1,539,086 | $1,397,157 |
| FY2024 | 990 | $1,102,169 | $827,891 | $593,952 | $1,308,359 | $1,168,541 |
| FY2023 | 990 | $826,783 | $639,710 | $407,352 | $1,030,887 | $882,872 |
| FY2022 | 990 | $777,073 | $764,044 | $519,194 | $837,468 | $659,666 |
| FY2021 | 990 | $921,694 | $726,171 | $509,989 | $773,260 | $646,271 |
| FY2020 | 990 | $836,433 | $643,311 | $478,055 | $507,921 | $503,521 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 84% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| UNIVERSITY OF PITTSBURGHPITTSBURGH, PA | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $215,108 | 2020 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Joel Wood | PRESIDENT | 10.00 | $0 |
| Scott Sinder | SECRETARY | 5.00 | $0 |
| James Wood | TREASURER | 5.00 | $0 |
| Dan Carson | DIRECTOR |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| CHILDREN'S NATIONAL MEDICAL CENTERWASHINGTON, DC |
| TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| $204,849 |
| 2022 |
| CHILDREN'S RESEARCH INSTITUTESILVER SPRING, MD | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $200,000 | 2021 |
| RESEARCH FOUNDATION FOR SUNY FOR THE STATE UNIVERISTY OF NEW YORKALBANY, NY | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $162,308 | 2024 |
| RESEARCH FOUNDATION FOR SUNY AT BINGHAMTON UNIVERSITYBINGHAMTON, NY | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $134,865 | 2023 |
| CHILDREN'S NATIONAL MEDICAL CENTERWASHINGTON, DC | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $125,000 | 2023 |
| CHILDREN'S RESEARCH INSTITUTEWASHINGTON, DC | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $101,000 | 2025 |
| CHILDREN'S RESEARCH INSTITUTESILVER SPRING, MD | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $101,000 | 2020 |
| CHILDREN'S NATIONAL HEART CENTERWASHINGTON, DC | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $100,000 | 2025 |
| RESEARCH FOUNDATION FOR SUNY AT BINGHAMTON UNIVERSITYBINGHAMTON, NY | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $98,835 | 2022 |
| BRITISH SCHOOLS AND UNIVERSITIES FOUNDATIONNEW YORK, NY | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $91,153 | 2021 |
| EMORY UNIVERSITYATLANTA, GA | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $90,000 | 2020 |
| BINGHAMTON UNIVERSITYBINGHAMTON, NY | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $86,860 | 2025 |
| VIRGINIA COMMONWEALTH UNIVERSITYRICHMOND, VA | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $75,000 | 2024 |
| MARSHALL UNIVERSITY RESEARCH CORPORATIONHUNTINGTON, WV | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $65,000 | 2021 |
| PARENT PROJECT MUSCULAR DYSTROPHYWASHINGTON, DC | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $50,000 | 2022 |
| PARENT PROJECT MUSCULAR DYSTROPHYWASHINGTON, DC | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $50,000 | 2023 |
| PARENT PROJECT MUSCULAR DYSTROPHYWASHINGTON, DC | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $50,000 | 2025 |
| PARENT PROJECT MUSCULAR DYSTROPHYHACKENSACK, NJ | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $50,000 | 2021 |
| REVERAGEN BIOPHARMA INCROCKVILLE, MD | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $47,852 | 2022 |
| RESEARCH FOUNDATION FOR SUNYBINGHAMPTON, NY | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $39,447 | 2020 |
| DUCHENNE RESEARCHRICHMOND, VA | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $38,703 | 2024 |
| UNIVERSITY OF PITTSBURGHPITTSBURGH, PA | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $35,836 | 2021 |
| PARENT PROJECT MUSCULAR DYSTROPHYHACKENSACK, NJ | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $30,000 | 2020 |
| OLD DOMINION UNIVERSITYNORFOLK, VA | TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $27,055 | 2025 |
| 1.00 |
| $0 |
| Dave Heil | DIRECTOR | 1.00 | $0 |
| Brad Todd | DIRECTOR | 1.00 | $0 |
| Bill Quirk | DIRECTOR | 1.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2024 · period ending Dec 31, 2024IRS bulk XML
Filing id 202511289349302851
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202413199349316031
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202333119349302038
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202223199349306137
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202103159349305380
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201943169349301449
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201843199349304889
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201742489349300364
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.