This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2025
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2025 | 990 | $9,807,320 | $9,133,802 | $1,040,281 | $18,024,174 | $16,048,406 |
| FY2024 | 990 | $10,000,895 | $8,660,018 | $730,927 | $17,254,701 | $15,366,113 |
| FY2023amended | 990 | $10,016,383 | $8,467,648 | $845,292 | $16,085,768 | $13,997,348 |
| FY2022amended | 990 | $8,909,542 | $8,063,684 | $1,032,155 | $14,827,937 | $12,454,846 |
| FY2021 | 990 | $9,015,987 | $6,869,562 | $948,236 | $14,046,866 | $11,608,986 |
| FY2020 | 990 | $5,128,164 | $5,422,190 | $685,788 | $11,657,873 | $9,462,561 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 79% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| NATIONAL ORGANIZATION FOR RARE DISORDERSDANBURY, CT | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $225,000 | 2021 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Paul Waxlax | BOARD CHAIR | 5.00 | $0 |
| Brittany Smith | VICE CHAIR | 5.00 | $0 |
| Mark Spotts | TREASURER | 5.00 | $0 |
| Kristi Lengyel | SECRETARY |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| BRIGHAM & WOMEN'S HOSPITALBOSTON, MA |
| RESEARCH GRANT |
| $179,892 |
| 2022 |
| NATIONAL ORGANIZATION FOR RARE DISORDERSWOBURN, MA | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $175,000 | 2024 |
| CHILDREN'S HOSPITAL CORPORATIONBOSTON, MA | RESEARCH GRANTS | $150,001 | 2020 |
| NATIONAL ORGANIZATION FOR RARE DISORDERSWOBURN, MA | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $150,000 | 2025 |
| NATIONAL ORGANIZATION FOR RARE DISORDERSWOBURN, MA | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $125,000 | 2023 |
| CHILDREN'S HOSPITAL CORPORATIONBOSTON, MA | RESEARCH GRANTS | $112,500 | 2021 |
| BRIGHAM & WOMEN'S HOSPITALBOSTON, MA | RESEARCH GRANTS | $109,963 | 2021 |
| BOSTON CHILDREN'S HOSPITALBOSTON, MA | RESEARCH GRANT | $100,579 | 2025 |
| CHILDREN'S HOSPITAL MEDICAL CENTERCINCINNATI, OH | CLINICAL RESEARCH | $100,000 | 2021 |
| UNIVERSITY OF ALABAMA BIRMINGHAMBIRMINGHAM, AL | RESEARCH GRANT | $91,649 | 2023 |
| BOSTON CHILDREN'S HOSPITALBOSTON, MA | RESEARCH GRANT | $81,869 | 2024 |
| NORTHWESTERN UNIVERSITYCHICAGO, IL | RESEARCH GRANTS | $75,001 | 2020 |
| UNIVERSITY OF CALIFORNIA IRVINEIRVINE, CA | RESEARCH GRANT | $75,000 | 2024 |
| UNIVERSITY OF WASHINGTONSEATTLE, WA | RESEARCH GRANT | $75,000 | 2022 |
| COLUMBIA UNIVERSITY IN THE CITY OF NEW YORKNEW YORK, NY | RESEARCH GRANT | $75,000 | 2023 |
| NATIONAL ORGANIZATION FOR RARE DISORDERSWOBURN, MA | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $75,000 | 2022 |
| UNIVERSITY OF MASSACHUSETTSWORCESTER, MA | RESEARCH GRANT | $75,000 | 2025 |
| UNIVERSITY OF MARYLAND BALTIMOREBALTIMORE, MD | RESEARCH GRANT | $75,000 | 2022 |
| EMORY UNIVERSITYATLANTA, GA | RESEARCH GRANT | $75,000 | 2025 |
| BAYLOR COLLEGE OF MEDICINEDALLAS, TX | RESEARCH GRANT | $75,000 | 2024 |
| UNIVERSITY OF TEXAS DALLASRICHARDSON, TX | RESEARCH GRANT | $75,000 | 2024 |
| UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTERDALLAS, TX | RESEARCH GRANT | $75,000 | 2022 |
| NORTHWESTERN UNIVERSITYEVANSTON, IL | RESEARCH GRANT | $75,000 | 2025 |
| NATIONAL ORGANIZATION FOR RARE DISORDERSDANBURY, CT | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $65,000 | 2020 |
| 2.00 |
| $0 |
| Derek Bauer | DIRECTOR | 2.00 | $0 |
| Julie Blum | DIRECTOR | 2.00 | $0 |
| Angelique Bordey | DIRECTOR | 2.00 | $0 |
| Frances Briones | DIRECTOR | 2.00 | $0 |
| Chip Burkhalter | DIRECTOR | 2.00 | $0 |
| Lisa Carlton | DIRECTOR | 2.00 | $0 |
| Mark Carroll | DIRECTOR | 2.00 | $0 |
| Sara Chieffo | DIRECTOR | 2.00 | $0 |
| Danielle Clark | DIRECTOR | 2.00 | $0 |
| Andrew Duffy | DIRECTOR | 2.00 | $0 |
| Juian Gangolli | DIRECTOR | 2.00 | $0 |
| Tanjala Gipson | DIRECTOR | 2.00 | $0 |
| Jonathan Goldstein | DIRECTOR | 2.00 | $0 |
| Rich Gollub | DIRECTOR | 2.00 | $0 |
| Lisa Henske | DIRECTOR | 2.00 | $0 |
| Lesley Holmes | DIRECTOR | 2.00 | $0 |
| Shafali Jeste | DIRECTOR | 2.00 | $0 |
| David Johnston | DIRECTOR | 2.00 | $0 |
| Bill Joseph | DIRECTOR | 2.00 | $0 |
| Jessica Krefting | DIRECTOR | 2.00 | $0 |
| Patroski Lawson | DIRECTOR | 2.00 | $0 |
| Laura Marks | DIRECTOR | 2.00 | $0 |
| Jim O'Heir | DIRECTOR | 2.00 | $0 |
| Noor Panjwani | DIRECTOR | 2.00 | $0 |
| Andrew Sperling | DIRECTOR | 2.00 | $0 |
| Vanessa Vazquez | DIRECTOR | 2.00 | $0 |
| Kari Luther Rosbeck | PRESIDENT & CEO | 54.00 | $254,957 |
| Jamie Saylor | CHIEF FINANCIAL OFFICER | 45.00 | $143,473 |
| Steven Roberds | CHIEF SCIENTIFIC OFFICER | 45.00 | $256,275 |
| Dean Rager-Aguiar | VICE PRESIDENT, TRANSLATIO | 45.00 | $191,780 |
| Lisa Moss | VICE PRESIDENT, DONOR RELA | 45.00 | $136,007 |
| Gail Saunders | DIRECTOR, COMMUNITY PROGRAMS | 45.00 | $103,236 |
| Heather Radtke | DIRECTOR, CLINICAL PROGRAMS | 45.00 | $119,764 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2024 · period ending Dec 31, 2024IRS bulk XML
Filing id 202531019349300508
Form 990 · FY2023 · period ending Dec 31, 2023 · amendedIRS bulk XML
Filing id 202432689349301018
Form 990 · FY2022 · period ending Dec 31, 2022 · amendedIRS bulk XML
Filing id 202432689349300943
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202241019349300349
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202101029349300610
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202031049349300853
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201930959349300318
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201800999349300410
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201711079349300606
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.