This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $1,072,285 | $2,686,450 | $284,579 | $383,105 | $383,105 |
| FY2023 | 990 | $1,550,288 | $1,725,984 | $678,091 | $1,997,270 | $1,997,270 |
| FY2022 | 990 | $1,452,603 | $1,160,011 | $1,066,532 | $2,172,966 | $2,172,966 |
| FY2021 | 990 | $1,570,342 | $961,714 | $882,899 | $1,880,374 | $1,880,374 |
| FY2020 | 990 | $940,947 | $601,648 | $521,821 | $1,271,746 | $1,271,746 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 96% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| SANFORD RESEARCHSIOUX FALLS, SD | TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC | $334,500 | 2022 |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| David Kahn | DIRECTOR | 4.00 | $0 |
| Karen Kahn | PRESIDENT/CEO | 10.00 | $0 |
| Kathryn Niederer | DIRECTOR | 2.00 | $0 |
| Jennifer Mcginn | DIRECTOR |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| SANFORD RESEARCHSIOUX FALLS, SD | TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC | $331,807 | 2021 |
| SANFORD RESEARCHSIOUX FALLS, SD | TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC | $267,850 | 2023 |
| ROSALIND FRANKLIN UNIVERSITY OF MEDICINE & SCIENCECHICAGO, IL | TO FUND RESEARCH OF ADVANCING KNOWLEDGE AND CREATING KNOWLEDGE THAT CAN BE TRANSLATED INTO IMPROVING THE HEALTH OF THE POPULATION | $259,258 | 2022 |
| SANFORD RESEARCHSIOUX FALLS, SD | TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC | $226,828 | 2020 |
| SANFORD RESEARCHSIOUX FALLS, SD | TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC | $225,666 | 2024 |
| ROSALIND FRANKLIN UNIVERSITY OF MEDICINE & SCIENCECHICAGO, IL | TO FUND RESEARCH OF ADVANCING KNOWLEDGE AND CREATING KNOWLEDGE THAT CAN BE TRANSLATED INTO IMPROVING THE HEALTH OF THE POPULATION | $211,745 | 2021 |
| UNIVERSITY OF ROCHESTERROCHESTER, NY | TO SUPPORT THE RESEARCH FOR THE PURPOSE OF THE EVALUATION OF PHOTORECEPTOR OUTER SEGMENT PHAGOCYTOSIS FUNCTION IN THE RETINA/RETINAL CELLS OBTAINED FROM A PORCINE MODEL OF CLN3-BATTEN DISEASE | $186,753 | 2022 |
| THE WASHINGTON UNIVERSITYSAINT LOUIS, MO | TO SUPPORT THE RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION | $135,653 | 2022 |
| THE WASHINGTON UNIVERSITYSAINT LOUIS, MO | TO SUPPORT THE RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION | $110,990 | 2023 |
| THE WASHINGTON UNIVERSITYSAINT LOUIS, MO | TO SUPPORT THE RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION | $110,990 | 2020 |
| UNIVERSITY OF ARIZONATUCSON, AZ | TO SUPPORT THE RESEARCH FOR THE PURPOSE OF IDENTIFYING POTENTIAL SMALL MOLECULE THERAPIES FOR THE TREATMENT OF CLN3 BATTEN DISEASE | $96,927 | 2021 |
| RARE SISTERS BATTEN FOUNDATIONARVADA, CO | TO SUPPORT OTHER BATTEN FOUNDATIONS | $80,000 | 2023 |
| UNIVERSITY OF ROCHESTERROCHESTER, NY | TO SUPPORT THE RESEARCH FOR THE PURPOSE OF THE EVALUATION OF PHOTORECEPTOR OUTER SEGMENT PHAGOCYTOSIS FUNCTION IN THE RETINA/RETINAL CELLS OBTAINED FROM A PORCINE MODEL OF CLN3-BATTEN DISEASE | $76,881 | 2021 |
| UNC HEALTH FOUNDATIONCHAPEL HILL, NC | TO SUPPORT BATTEN RESEARCH | $75,834 | 2023 |
| UNIVERSITY OF ROCHESTERROCHESTER, NY | TO SUPPORT THE RESEARCH FOR THE PURPOSE OF THE EVALUATION OF PHOTORECEPTOR OUTER SEGMENT PHAGOCYTOSIS FUNCTION IN THE RETINA/RETINAL CELLS OBTAINED FROM A PORCINE MODEL OF CLN3-BATTEN DISEASE | $73,417 | 2023 |
| BDSRACOLUMBUS, OH | TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE. | $70,000 | 2020 |
| BDSRACOLUMBUS, OH | TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE. | $65,000 | 2023 |
| BDSRACOLUMBUS, OH | TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE. | $65,000 | 2022 |
| THE WASHINGTON UNIVERSITYSAINT LOUIS, MO | TO SUPPORT THE RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION | $55,495 | 2021 |
| ROSALIND FRANKLIN UNIVERSITY OF MEDICINE & SCIENCECHICAGO, IL | TO FUND RESEARCH OF ADVANCING KNOWLEDGE AND CREATING KNOWLEDGE THAT CAN BE TRANSLATED INTO IMPROVING THE HEALTH OF THE POPULATION | $44,002 | 2020 |
| RARE SISTERS BATTEN FOUNDATIONARVADA, CO | TO SUPPORT THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE | $25,000 | 2021 |
| OUR PROMISE TO NICK FOUNDATIONBEDFORD, NH | TO PURCHASE HOLIDAY CARE PACKAGES TO SUPPORT CHILDREN | $10,000 | 2022 |
| BDSRACOLUMBUS, OH | TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE. | $8,913 | 2024 |
| OUR PROMISE TO NICK FOUNDATIONBEDFORD, NH | TO PURCHASE HOLIDAY CARE PACKAGES TO SUPPORT 55 KIDS | $7,500 | 2021 |
| 2.00 |
| $0 |
| Marlena Kahn | SECRETARY | 1.00 | $0 |
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202403199349313260
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202313199349329631
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202242249349301904
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202103129349304155
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201913189349314206
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201841349349308839
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.