This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $19,738,640 | $19,009,492 | $5,493,525 | $30,677,831 | $26,769,526 |
| FY2023 | 990 | $16,447,289 | $18,828,152 | $5,118,408 | $30,074,603 | $25,720,900 |
| FY2022 | 990 | $16,990,325 | $15,815,548 | $4,539,432 | $32,079,774 | $27,551,982 |
| FY2021 | 990 | $16,779,578 | $10,418,437 | $2,298,320 | $29,600,801 | $27,295,800 |
| FY2020 | 990 | $12,831,946 | $10,393,620 | $2,913,694 | $23,094,143 | $20,538,815 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 77% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| MASSACHUSETTS GENERAL HOSPITALBOSTON, MA | RESEARCH - CONTRACT AWARD, YIA, CRA & NF CLINIC NETWORK | $627,307 | 2023 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Carol Kalagher | BOARD MEMBER (OUTGOING) | 1.00 | $0 |
| Daniel Altman | BOARD MEMBER | 1.00 | $0 |
| Daniel Gilbert | BOARD MEMBER (OUTGOING) | 1.00 | $0 |
| Ed Stern | BOARD MEMBER (OUTGOING) |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIALOS ANGELES, CA |
| RESEARCH - NFCN & CONTRACT AWARD |
| $509,016 |
| 2022 |
| SAGE BIONETWORKSSEATTLE, WA | RESEARCH - CONTRACT AWARDS | $480,105 | 2021 |
| MASSACHUSETTS GENERAL HOSPITALBOSTON, MA | RESEARCH - CONTRACT AWARD, YIA, CRA & NF CLINIC NETWORK | $466,600 | 2022 |
| MASSACHUSETTS GENERAL HOSPITALBOSTON, MA | RESEARCH - CONTRACT AWARD, YIA, DDI, CRA AND NF CLINIC NETWORK | $449,795 | 2024 |
| UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCESLITTLE ROCK, AR | RESEARCH - NFCN & ADULT NF CLINIC PROGRAM | $449,610 | 2022 |
| WASHINGTON UNIVERSITYST LOUIS, MO | RESEARCH - CONTRACT AWARD & NF CLINIC NETWORK | $439,440 | 2023 |
| WASHINGTON UNIVERSITYST LOUIS, MO | RESEARCH - CONTRACT AWARD AND YIA | $437,707 | 2024 |
| MASSACHUSETTS GENERAL HOSPITALBOSTON, MA | RESEARCH - CONTRACT AWARD, DRUG DISCOVERY INITIATE & CLINICAL RESEARCH AWARD | $410,000 | 2020 |
| WASHINGTON UNIVERSITYST LOUIS, MO | RESEARCH - CONTRACT AWARD, YIA & NF CLINIC NETWORK | $388,847 | 2022 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIALOS ANGELES, CA | RESEARCH - CONTRACT AWARD, YIA AND NFCN | $336,410 | 2024 |
| SAGE BIONETWORKSSEATTLE, WA | RESEARCH - CONTRACT AWARD | $328,754 | 2024 |
| AMERICAN SOCIETY OF GENE AND CELL THERAPYWAUKESHA, WI | RESEARCH - CONTRACT AWARD | $300,000 | 2023 |
| OREGON HEALTH AND SCIENCE UNIVERSITYPORTLAND, OR | RESEARCH - DDI | $284,744 | 2023 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | RESEARCH - OPG & DDI | $279,576 | 2021 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | RESEARCH - OPG, DDI & NF CLINIC NETWORK | $279,188 | 2022 |
| SAGE BIONETWORKSSEATTLE, WA | RESEARCH - CONTRACT AWARD | $258,888 | 2022 |
| NATIONAL CANCER INSTITUTEPITTSBURG, PA | RESEARCH - CONTRACT AWARD AND CRA | $242,758 | 2024 |
| UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCESLITTLE ROCK, AR | RESEARCH - NFCN | $234,442 | 2024 |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCINCINNATI, OH | RESEARCH - OPG, CONTRACT AWARD, NF CLINIC NETWORK, YIA AND CRA | $230,224 | 2024 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | RESEARCH - OPG | $228,194 | 2024 |
| NATIONAL CANCER INSTITUTEPITTSBURG, PA | RESEARCH - CONTRACT AWARD & NF CLINIC NETWORK | $209,792 | 2022 |
| SAGE BIONETWORKSSEATTLE, WA | RESEARCH - CONTRACT AWARD | $203,926 | 2020 |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCINCINNATI, OH | RESEARCH - OPG & YIA | $203,750 | 2023 |
| NATIONAL CANCER INSTITUTEPITTSBURG, PA | RESEARCH - CONTRACT AWARD | $195,666 | 2023 |
| 1.00 |
| $0 |
| Emily Parker | BOARD MEMBER | 1.00 | $0 |
| Frank Haughton | BOARD MEMBER | 1.00 | $0 |
| Gabriel Groisman | CHAIR | 1.00 | $0 |
| George Thuronyi | BOARD MEMBER | 1.00 | $0 |
| Jaishri Blakeley | BOARD MEMBER | 1.00 | $0 |
| Kenneth Rudd | BOARD MEMBER | 1.00 | $0 |
| Laura Granneman | BOARD MEMBER | 1.00 | $0 |
| Linda H Martin | CHAIR EMERITUS | 1.00 | $0 |
| Liz Rodbell | VICE CHAIR | 1.00 | $0 |
| Lu Le | BOARD MEMBER | 1.00 | $0 |
| Mark Oppenheimer | BOARD MEMBER | 1.00 | $0 |
| Montse Montaner Picart | BOARD MEMBER | 1.00 | $0 |
| Randall Stanicky | BOARD MEMBER | 1.00 | $0 |
| Rb Harrison | TREASURER | 1.00 | $0 |
| Richard Horvitz | CHAIR EMERITUS | 1.00 | $0 |
| Richard Soll | BOARD MEMBER | 1.00 | $0 |
| Robert Brainin | BOARD MEMBER (OUTGOING) | 1.00 | $0 |
| Roger - Ketcha Ngassam | BOARD MEMBER | 1.00 | $0 |
| Sally Gottesman | BOARD MEMBER | 1.00 | $0 |
| Scott Plotkin | BOARD MEMBER | 1.00 | $0 |
| Simone Manso | BOARD MEMBER | 1.00 | $0 |
| Steven Mckenzie | BOARD MEMBER | 1.00 | $0 |
| Tracy Galloway | BOARD MEMBER | 1.00 | $0 |
| Vicki Match Suna | BOARD MEMBER | 1.00 | $0 |
| Wade Clapp | BOARD MEMBER | 1.00 | $0 |
| Annette Bakker | PRESIDENT | 37.50 | $404,743 |
| Brigid Garelik | CHIEF MEDICAL OFFICER | 37.50 | $343,266 |
| Monica Sohn | CHIEF GROWTH OFFICER | 37.50 | $258,750 |
| Sarah Bourne | SR. VP, FINANCE AND OPERATIONS | 37.50 | $194,226 |
| Simon Vukelj | CHIEF MARKETING OFFICER | 37.50 | $246,075 |
| Amy Boulas | VP DEV. PTP AND FIELD BASED EVENTS | 37.50 | $151,528 |
| Barbara Gallagher | VICE PRESIDENT OF DEV. | 37.50 | $172,066 |
| Irene Morganstern | DIRECTOR, PRECLINICAL INITIATIVES | 37.50 | $183,952 |
| Jennifer Ching | DIRECTOR, HUMAN RESOURCES | 37.50 | $160,108 |
| Michele Przypyszny | CHIEF ADVANCEMENT OFFICER | 37.50 | $166,864 |
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202413209349326726
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202333149349302703
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202223199349331417
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202103029349301015
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202042399349300529
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201931359349301408
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201821359349306942
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201711359349303871
Form 990 · FY2015 · period ending Dec 31, 2015
Filing id 201602539349301105
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.