This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $14,311,761 | $12,881,402 | $2,650,583 | $12,567,424 | $11,458,110 |
| FY2023 | 990 | $13,881,085 | $12,112,486 | $2,560,127 | $10,440,900 | $9,806,185 |
| FY2022 | 990 | $10,753,014 | $11,037,641 | $2,629,658 | $8,648,654 | $7,880,238 |
| FY2021 | 990 | $10,856,558 | $7,843,364 | $2,509,187 | $10,203,860 | $8,699,472 |
| FY2020 | 990 | $9,559,090 | $7,865,638 | $2,689,159 | $7,136,426 | $6,055,433 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| OHIO STATE UNIVERSITYCOLUMBUS, OH | RESEARCH PROGRAM- CARDIAC INITIATIVE (GENE EDITING TO CORRECT HEART FUNCTION) | $121,644 | 2021 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Gretchen Egner | BOARD CHAIRMAN | 8.00 | $0 |
| Alpa Khushalani | VICE CHAIR | 8.00 | $0 |
| Dawn Rezkalla | TREASURER | 6.00 | $0 |
| Deanne Friar | SECRETARY |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| NORTHWESTERN UNIVERSITYEVANSTON, IL |
| RESEARCH PROGRAM- CARDIAC INITIATIVE |
| $120,000 |
| 2021 |
| NORTHWESTERN UNIVERSITYEVANSTON, IL | RESEARCH- WELLSTONE SUPPLEMENT | $110,250 | 2023 |
| ANALYSIS GROUPBOSTON, MA | RESEARCH- SUPPORT OF COLLECTIVE ANALYSIS TRAJECTORY PROJECT | $106,667 | 2022 |
| UNIVERSITY OF ROCHESTER MEDICAL CENTERROCHESTER, NY | RESEARCH PROGRAM - GENE THERAPY INITIATIVE | $101,700 | 2020 |
| NEW YORK UNIVERSITYNEW YORK, NY | RESEARCH- PEDIATRIC GENE THERAPY MEDICAL ETHICS | $100,000 | 2023 |
| NEW YORK UNIVERSITYNEW YORK, NY | RESEARCH - PEDIATRIC THERAPY MEDICAL ETHICS | $100,000 | 2024 |
| NEW YORK UNIVERSITYNEW YORK, NY | RESEARCH- PEDIATRIC GENE THERAPY MEDICAL ETHICS | $100,000 | 2022 |
| CRITICAL PATH INSTITUTETUCSON, AZ | RESEARCH- SUPPORT OF DUCHENNE REGULATORY SCIENCE CONSORTIUM | $100,000 | 2021 |
| CRITICAL PATH INSTITUTETUCSON, AZ | RESEARCH- SUPPORT OF DUCHENNE REGULATORY SCIENCE CONSORTIUM | $100,000 | 2020 |
| CRITICAL PATH INSTITUTETUCSON, AZ | RESEARCH - SUPPORT OF DUCHENNE REGULATORY SCIENCE CONSORTIUM | $100,000 | 2022 |
| CRITICAL PATHTUCSON, AZ | RESEARCH - SUPPORT OF DUCHENNE REGULATORY SCIENCE CONSORTIUM | $100,000 | 2024 |
| CRITICAL PATHTUCSON, AZ | RESEARCH- SUPPORT OF DUCHENNE REGULATORY SCIENCE CONSORTIUM | $99,601 | 2023 |
| THE NEMOURS FOUNDATIONWILMINGTON, DE | CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS | $92,276 | 2022 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA-BERKELEYBERKELEY, CA | RESEARCH- WELLSTONE SUPPLEMENT | $86,529 | 2022 |
| OHIO STATE UNIVERSITYCOLUMBUS, OH | RESEARCH - FELLOWSHIP | $84,363 | 2024 |
| THE NEMOURS FOUNDATIONWILMINGTON, DE | CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS | $80,003 | 2023 |
| CINCINNATI CHILDREN'S HOSPITAL MCCINCINNATI, OH | CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS | $75,000 | 2021 |
| RESEARCH FOUNDATION FOR SUNY (BINGHAMTON)BINGHAMTON, NY | RESEARCH- TARGETING THE INNATE IMMUNE SYSTEM TO BLOCK ACUTE INFLAMMATORY AND CHRONIC IMMUNE RESPONSES TO TRANSGENE AND AAV VECTOR IN DMD-2021 | $75,000 | 2023 |
| NEW YORK UNIVERSITYNEW YORK, NY | RESEARCH GRANT- GENE THERAPY INITIATIVE | $75,000 | 2021 |
| NEW YORK UNIVERSITYNEW YORK, NY | RESEARCH PROGRAM - GENE THERAPY INITIATIVE | $75,000 | 2020 |
| NORTHWESTERN UNIVERSITYEVANSTON, IL | RESEARCH- WELLSTONE SUPPLEMENT | $73,500 | 2022 |
| NORTHWESTERN UNIVERSITYEVANSTON, IL | RESEARCH - WELLSTONE SUPPLEMENT | $73,500 | 2024 |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA - LALOS ANGELES, CA | RESEARCH PROGRAM - GENE THERAPY INITIATIVE (CRISPR/CAS9 OPTIMIZATION) | $64,866 | 2020 |
| AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICSBETHESDA, MD | RESEARCH GRANT- NYS NEWBORN SCREENING | $63,510 | 2021 |
| 6.00 |
| $0 |
| David N Hofstein | EXECUTIVE COMMITTEE | 6.00 | $0 |
| Sue Apkon | DIRECTOR | 2.00 | $0 |
| Jeffrey Bigelow | DIRECTOR | 2.00 | $0 |
| Maru Chapur | DIRECTOR | 2.00 | $0 |
| Timothy Cripe | DIRECTOR | 2.00 | $0 |
| Michelle Furlong | DIRECTOR | 2.00 | $0 |
| Lance Hester | DIRECTOR | 2.00 | $0 |
| Susan Huang | DIRECTOR | 2.00 | $0 |
| John Killian | DIRECTOR | 2.00 | $0 |
| Richard Klein | DIRECTOR | 2.00 | $0 |
| Scott Perrin | DIRECTOR | 2.00 | $0 |
| Colin Rensch | DIRECTOR | 2.00 | $0 |
| Patricia A Furlong | PRESIDENT AND CEO | 40.00 | $370,075 |
| Kaylan Moitoso | CHIEF BUSINESS OFFICER | 40.00 | $293,650 |
| Jodi Wolff | CHIEF PROGRAM OFFICER | 40.00 | $194,569 |
| Ann Martin | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERV. | 40.00 | $176,600 |
| Rachel Schrader | VICE PRESIDENT, CLINICAL CARE & EDUCATION | 40.00 | $174,800 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.