This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2025
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2025 | 990 | $68,583,051 | $82,239,637 | $16,679,289 | $107,245,128 | $88,974,972 |
| FY2024 | 990 | $126,450,238 | $98,839,577 | $22,892,366 | $127,891,549 | $98,132,226 |
| FY2023 | 990 | $55,567,608 | $84,199,819 | $18,722,140 | $94,445,022 | $64,234,465 |
| FY2022 | 990 | $39,792,803 | $44,852,298 | $15,323,942 | $98,343,083 | $91,089,833 |
| FY2021 | 990 | $35,112,517 | $38,436,196 | $13,659,140 | $100,284,898 | $93,069,685 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 76% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| THE GENERAL HOSPITAL CORPORATION DBA MASSACHUSETTS GENERALBOSTON, MA | STRATEGIC INITIATIVE | $1,318,456 | 2021 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Scott Kauffman | CHAIR | 5.00 | $0 |
| Larry Falivena | CHAIR-ELECT | 5.00 | $0 |
| Nancy Leamond | VICE CHAIR (AS OF 07/24) | 5.00 | $0 |
| Fred M Degrandis | VICE CHAIR (THRU 07/24)/TRUSTEE |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA |
| STRATEGIC INITIATIVE |
| $1,229,018 |
| 2021 |
| NEW YORK GENOME CENTERNEW YORK, NY | STRATEGIC INITIATIVE | $1,150,000 | 2021 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | STRATEGTIC INITIATIVE | $1,109,018 | 2022 |
| MASSACHUSETTS GENERAL HOSPITALBOSTON, MA | STRATEGTIC INITIATIVE | $1,000,000 | 2022 |
| PROJENX INCNEW YORK, NY | CLINICAL TRIAL AWARD | $750,000 | 2024 |
| UNIVERSITY OF MIAMIMIAMI, FL | BITNER PLANTE QUARTERLY GRANT FY25 | $652,154 | 2025 |
| UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INCKANSAS CITY, KS | TRIAL CAPACITY PROGRAM; CLINICAL TRIAL AWARD | $600,000 | 2024 |
| NEW YORK GENOME CENTERNEW YORK, NY | STRATEGTIC INITIATIVE | $575,000 | 2022 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | STRATEGIC INITIATIVE | $554,508 | 2023 |
| UNIVERSITY MEDICAL SERVICE ASSOCIATION INCORLANDO, FL | BITNER PLANTE QUARTERLY GRANT FY25 | $551,417 | 2025 |
| MASSACHUSETTS GENERAL HOSPITAL - RESEARCHBOSTON, MA | STRATEGIC INITIATIVE | $500,000 | 2023 |
| RAPA THERAPEUTICS LLCROCKVILLE, MD | CLINICAL TRIAL AWARD | $500,000 | 2022 |
| THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION (AFTD)KING OF PRUSSIA, PA | PARTNERSHIP PROGRAM GRANT | $500,000 | 2023 |
| AQUILUS PHARMACEUTICALS INCWINCHESTER, MA | CLINICAL TRIAL AWARD | $500,000 | 2024 |
| TARGET ALS FOUNDATIONNEW YORK, NY | PARTNERSHIP PROGRAM GRANT | $500,000 | 2023 |
| UNIVERSITY OF FLORIDA BOARD OF TRUSTEESGAINESVILLE, FL | CLINICAL TRIAL AWARD | $500,000 | 2022 |
| FOCUSED ULTRASOUND FOUNDATIONCHARLOTTESVILLE, VA | PARTNERSHIP PROGRAM GRANT | $500,000 | 2023 |
| MASS GENERAL HOSPITAL- RESEARCHBOSTON, MA | STRATEGIC INITIATIVE | $500,000 | 2021 |
| UNIVERSITY OF MIAMIMIAMI, FL | ANNUAL GRANT PAYMENT FY24 CENTER OF EXCELLENCE/RESEARCH; BITNER PLANTE QUARTERLY GRANT; ADDITIONAL QUARTERLY GRANT FUNDING | $454,740 | 2024 |
| NORTHEAST ALS CONSORTIUMBOSTON, MA | STRATEGIC INITIATIVE | $450,000 | 2023 |
| MAYO CLINIC FLORIDAROCHESTER, MN | BITNER PLANTE QUARTERLY GRANT FY25 | $426,327 | 2025 |
| MAYO CLINIC ARIZONASCOTTSDALE, AZ | SEED GRANTS PROGRAM; TRIAL CAPACITY PROGRAM; QUALITY OF CARE PROGRAM | $400,000 | 2024 |
| UNIVERSITY OF FLORIDAGAINESVILLE, FL | CLINICAL TRIAL AWARD | $390,413 | 2024 |
| THE METHODIST HOSPITAL RESEARCH INSTITUTEHOUSTON, TX | ALSA INITIATED | $380,700 | 2021 |
| 2.00 |
| $0 |
| Fred M Degrandis | TRUSTEE | 5.00 | $0 |
| Sandra Piersol | SECRETARY | 4.00 | $0 |
| Mark Stancil | TREASURER | 4.00 | $0 |
| Connie Houston | TRUSTEE | 2.00 | $0 |
| Eugene Brandon Phd | TRUSTEE | 2.00 | $0 |
| David Van De Riet | TRUSTEE | 2.00 | $0 |
| Christi L Kolarcik Phd | TRUSTEE (THRU 07/24) | 2.00 | $0 |
| J Thomas May | TRUSTEE | 2.00 | $0 |
| Mark Calmes | TRUSTEE (THRU 07/24) | 2.00 | $0 |
| Paul Ingholt | TRUSTEE (THRU 07/24) | 2.00 | $0 |
| Tom Carroll | TRUSTEE | 2.00 | $0 |
| Michael Benatar | TRUSTEE | 2.00 | $0 |
| Peter Mckown | TRUSTEE | 2.00 | $0 |
| Rebecca Moss | TRUSTEE | 2.00 | $0 |
| Kenton Van Harten | TRUSTEE (THRU 10/24) | 2.00 | $0 |
| Dough Butcher | TRUSTEE | 2.00 | $0 |
| William Soffell | TRUSTEE | 2.00 | $0 |
| Chris Tonniges | TRUSTEE | 2.00 | $0 |
| Jesse Ybarra | TRUSTEE | 2.00 | $0 |
| Bernie Zipprich | TRUSTEE | 2.00 | $0 |
| Danielle Boisvert | TRUSTEE | 2.00 | $0 |
| Annette Bowman | TRUSTEE | 2.00 | $0 |
| Eve Dryer | TRUSTEE | 2.00 | $0 |
| Seda Goff | TRUSTEE | 2.00 | $0 |
| Kelly Hall | TRUSTEE | 2.00 | $0 |
| Steve Hanon | TRUSTEE | 2.00 | $0 |
| Calaneet Balas | PRESIDENT AND CEO | 37.50 | $491,499 |
| Greg Mitchell | CHIEF FINANCIAL OFFICER | 37.50 | $288,086 |
| Neil Thakur | CHIEF MISSION OFFICER | 37.50 | $195,440 |
| Dean Feener | CHIEF INFORMATION & TECHNOLOGY OFFICER | 37.50 | $264,616 |
| Brian Frederick | CHIEF MARKETING & COMMUNICATIONS OFFICER | 37.50 | $250,253 |
| Patrick Reedy | CHIEF DEVELOPMENT OFFICER | 37.50 | $270,892 |
| Jennifer Hjelle | CHIEF COMMUNITY ENGAGEMENT OFFICER | 37.50 | $244,313 |
| Nicole Eck | CHIEF STRATEGY OFFICER | 37.50 | $231,124 |
| Lance Slaughter | SVP STRATEGIC ALLIANCES & GOVERNANCE | 37.50 | $245,671 |
| Vickie Lobello | SENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE | 37.50 | $237,001 |
| Kuldip Dave | SENIOR VICE PRESIDENT RESEARCH | 37.50 | $232,488 |
| Kimberly Harding-Maginnis | SENIOR VICE PRESIDENT CARE SERVICES | 37.50 | $221,492 |
| Keith Gary | VICE PRESIDENT MISSION ACCELERATION | 37.50 | $219,020 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2025 · period ending Jan 31, 2025IRS bulk XML
Filing id 202543459349301414
Form 990 · FY2024 · period ending Jan 31, 2024IRS bulk XML
Filing id 202413489349301366
Form 990 · FY2023 · period ending Jan 31, 2023
Filing id 202303479349300530
Form 990 · FY2022 · period ending Jan 31, 2022
Filing id 202222139349300732
Form 990 · FY2021 · period ending Jan 31, 2021
Filing id 202141669349301914
Form 990 · FY2020 · period ending Jan 31, 2020
Filing id 202041719349300104
Form 990 · FY2019 · period ending Jan 31, 2019
Filing id 201921629349300207
Form 990 · FY2018 · period ending Jan 31, 2018
Filing id 201821639349300812
Form 990 · FY2017 · period ending Jan 31, 2017
Filing id 201741649349300114
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.