This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $6,883,911 | $15,111,434 | $15,047,154 | $10,349,543 | $10,116,521 |
| FY2023 | 990 | $9,521,090 | $5,386,586 | $5,331,337 | $18,398,741 | $18,258,604 |
| FY2022 | 990 | $8,115,909 | $4,721,535 | $4,681,984 | $14,506,455 | $14,056,173 |
| FY2021 | 990 | $8,373,465 | $3,278,799 | $3,192,676 | $11,092,671 | $10,715,503 |
| FY2020 | 990 | $6,859,079 | $5,443,291 | $5,368,029 | $7,251,040 | $5,620,837 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 70% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $3,023,731 | 2024 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jennifer Gilbert | PRESIDENT | 0.50 | $0 |
| Matthew Rizik | TREASURER & SECRETARY | 0.50 | $0 |
| Jeffrey Morganroth | DIRECTOR | 0.50 | $0 |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| UNIVERSITY OF ALABAMA BIRMINGHAMBIRMINGHAM, AL |
| SUPPORT FOR NEUROFIBROMATOSIS RESEARCH |
| $2,844,918 |
| 2020 |
| STANFORD UNIVERSITYREDWOOD CITY, CA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $2,492,685 | 2024 |
| STANFORD UNIVERSITYREDWOOD CITY, CA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $2,434,903 | 2022 |
| STANFORD UNIVERSITYREDWOOD CITY, CA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $1,971,529 | 2023 |
| CHILDREN'S TUMOR FOUNDATIONNEW YORK, NY | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $1,500,000 | 2022 |
| CHILDREN'S TUMOR FOUNDATIONNEW YORK, NY | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $1,500,000 | 2021 |
| CHILDREN'S TUMOR FOUNDATIONNEW YORK, NY | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $1,500,000 | 2024 |
| CHILDREN'S TUMOR FOUNDATIONNEW YORK, NY | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $1,492,500 | 2023 |
| CHILDREN'S TUMOR FOUNDATIONNEW YORK, NY | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $1,492,500 | 2020 |
| UNIVERSITY OF ALABAMA AT BIRMINGHAMBIRMINGHAM, AL | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $1,184,294 | 2024 |
| STANFORD UNIVERSITYPALO ALTO, CA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $1,030,611 | 2020 |
| WASHINGTON UNIVERSITYST LOUIS, MO | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $887,596 | 2024 |
| CHILDREN'S HOSPITAL CORPORATIONBOSTON, MA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $859,027 | 2024 |
| UNIVERSITY OF ALABAMABIRMINGHAM, AL | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $747,081 | 2022 |
| STANFORD UNIVERSITYREDWOOD CITY, CA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $656,420 | 2021 |
| BATTELLE MEMORIAL INSTITUTECOLUMBUS, OH | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $619,262 | 2024 |
| UNIVERSITY OF ALABAMABIRMINGHAM, AL | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $553,256 | 2021 |
| UNIVERSITY OF MASSACHUSETTSWORCESTER, MA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $537,597 | 2024 |
| PENNINGTON BIOMEDICAL RESEARCH CENTERBATON ROUGE, LA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $518,771 | 2023 |
| THE GENERAL HOSPITAL CORPORATIONBOSTON, MA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $477,568 | 2023 |
| THE RESEARCH INSTITUTE AT NATIONWIDECOLUMBUS, OH | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $470,969 | 2023 |
| THE GENERAL HOSPITAL CORPORATIONBOSTON, MA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $427,713 | 2024 |
| DUKE UNIVERSITYDURHAM, NC | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $400,000 | 2023 |
| UNIVERSITY OF CALIFORNIA SAN FRANCISCOSAN FRANCISCO, CA | SUPPORT FOR NEUROFIBROMATOSIS RESEARCH | $395,815 | 2024 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202443139349302634
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202323189349316642
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202243189349313279
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202133169349301968
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201943059349300114
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201803199349317705
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.