This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $4,117,942 | $2,566,630 | $5,255 | $3,413,223 | $3,355,673 |
| FY2023 | 990 | $2,326,778 | $2,174,696 | $4,000 | $1,851,960 | $1,794,879 |
| FY2022 | 990 | $1,631,851 | $2,291,456 | $0 | $1,680,946 | $1,642,797 |
| FY2021amended | 990 | $3,345,834 | $2,374,530 | $2,000 | $2,432,581 | $2,377,402 |
| FY2020 | 990 | $1,632,477 | $2,366,291 | $500,000 | $1,045,740 | $931,098 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| MASSACHUSETTS GENERAL HOSPITALBOSTON, MA | EXPANDED ACCESS PROTOCOL (EAP) PROGRAM FOR VERDIPERSTAT | $200,000 | 2020 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Sandra Abrevaya | CO-FOUNDER | 2.00 | $0 |
| Brian Wallach | CO-FOUNDER | 2.00 | $0 |
| Peggy Plews-Ogan | BOARD SECRETARY | 2.00 | $0 |
| Jennifer Fortner | BOARD TREASURER |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| UNIVERSITY OF CALIFORNIA IRVINEIRVINE, CA |
| PRE-CLINICAL EVALUATION OF THE PPAR-DELTA AGONIST KD3010 AS A TREATMENT FOR ALS |
| $200,000 |
| 2020 |
| ALS ASSOCIATIONARLINGTON, VA | SUPPORT BRAINSTORM BIOMARKERS PROJECT | $100,000 | 2020 |
| 2.00 |
| $0 |
| Peter Bowen | BOARD CHAIR | 2.00 | $0 |
| Jano Cabrera | BOARD MEMBER | 2.00 | $0 |
| Louise Langheier | BOARD MEMBER | 2.00 | $0 |
| Michael O'Neil | BOARD MEMBER | 2.00 | $0 |
| Neel Parekh | BOARD MEMBER | 2.00 | $0 |
| Juan A Reyes | BOARD MEMBER | 2.00 | $0 |
| Michael Slaby | BOARD MEMBER | 2.00 | $0 |
| Dan Tate | BOARD MEMBER | 2.00 | $0 |
| Andrea Goodman | CEO | 40.00 | $258,050 |
| Aditi Narayan Minkoff | VP OF COMMUNITY SUPPORT | 40.00 | $153,495 |
| Michael Lecker | VP OF COMMUNITY ORGANIZING | 40.00 | $139,867 |
| Sonya Elling | CHIEF GOVERNMENT AFFAIRS OFFICER | 40.00 | $194,838 |
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202432759349300213
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202333139349301308
Form 990 · FY2021 · period ending Dec 31, 2021 · amended
Filing id 202322409349300512
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202102529349300900
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.